Author Information
Julia Wong, Singapore Institute of Technology, SingaporeTong Guo, Singapore Institute of Technology, Singapore
Jonathan Tang, University of Sheffield, Singapore
Shafeeqah Zainab, Singapore Institute of Technology, Singapore
Jasmine Tan, Singapore Institute of Technology, Singapore
Emily Guo, Singapore Institute of Technology, Singapore
Abstract
Aphasia is an acquired communication impairment caused by damage to the brain’s left hemisphere that controls language. Persons with aphasia (PWAs) encounter difficulties communicating with others. PWAs often experience significant life-altering psychosocial and financial outcomes (e.g., social isolation, poor career performances). These impacts of aphasia also carry over to caregivers of PWAs. Studies have reported that group singing engages language-capable regions in the unaffected right hemisphere to facilitate speech. Singing can also reduce stress, improve mood and socialisation for PWAs and their caregivers. We interviewed 12 PWAs and caregivers who participated in an online Aphasia Choir to understand their experiences from the time the PWAs were diagnosed, their perceptions on the participation in the choir, and how these experiences relate to their lives. We used the Assessment for Living with Aphasia and the Family Aphasia Measure of Life Impact assessment tools, with additional qualitative questions to obtain in-depth qualitative data. PWAs shared that they enjoyed participating in the choir as they felt less alone, seeing how other PWAs are also affected by aphasia. Caregivers’ participation in the choir helped to encourage PWAs to sing and talk more. Caregivers also found the choir to be an enjoyable experience. Bonding with other caregivers and exchanging of tips and experiences have also helped to improve their communications with their PWAs. This study is limited by its small sample size. Future studies could consider a larger sample size and a longitudinal approach.
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