Caring in the Shadows: Exploring the Lived Experiences of Indigent Primary Caregivers of Patients With Schizophrenia in Rural Philippines

Abstract

Diagnosis within the schizophrenia spectrum places a huge burden not only on the patients but also on their caregivers, who live with them and interact with them regularly. This qualitative phenomenological study is about the lived experiences of indigent primary caregivers of patients diagnosed with schizophrenia spectrum disorders in General Luna, Quezon Province, Philippines. Ethical standards of trustworthiness and rigor were followed. The data gathering was accomplished through unstructured one-on-one interviews with seven (7) participants, who were purposively chosen using criterion sampling. Narratives were transcribed and analyzed using Smith et al.'s (2009) interpretative phenomenological analysis. The study revealed four (4) major superordinate themes: (1) Guided by Culture: Embracing the Caregiving Journey with Filipino Values; (2) Emotions Unveiled: Mapping the Emotional Trajectory of Caring; (3) Unseen Warriors: Fighting Silent Battles and Overcoming Untold Struggles; and (4) Boundless Devotion: Navigating the Altruistic World of the Primary Caregivers. Findings showed that participants’ experiences underscore the profound impact of Filipino cultural values on the caregiving experience and emphasize the emotional complexity of caregiving for individuals with schizophrenia. There were also challenges and difficulties faced by the participants. Their altruistic world involves the immense sacrifices they make, the transformative impact on their identities, and the coping strategies they employ to navigate the challenges they face. The insights gained from the participants can inform tailored support systems and interventions, benefiting similar caregiving situations. The study has implications for improving mental health programs and aiding both patients and caregivers.



Author Information
Jona-Mae de Torres, Calayan Educational Foundation Inc., Philippines
Juliet San Luis, Calayan Educational Foundation Inc., Philippines
Maurice Villafranca, Calayan Educational Foundation Inc., Philippines

Paper Information
Conference: ACP2024
Stream: Mental Health

This paper is part of the ACP2024 Conference Proceedings (View)
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To cite this article:
Torres J., Luis J., & Villafranca M. (2024) Caring in the Shadows: Exploring the Lived Experiences of Indigent Primary Caregivers of Patients With Schizophrenia in Rural Philippines ISSN: 2187-4743 – The Asian Conference on Psychology & the Behavioral Sciences 2024 Official Conference Proceedings https://doi.org/10.22492/issn.2187-4743.2024.6
To link to this article: https://doi.org/10.22492/issn.2187-4743.2024.6


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Posted by James Alexander Gordon