TTV GUIDE TX Project: The Importance of Patient’s Values in Research


In health research, the participation of patients is essential, as it can contribute to increasing the acceptability and accessibility of health services, as well as improving both the quality and relevance of research. Knowledge based on one's own experience with the disease, symptoms, therapy and the health system can complement scientific knowledge by providing broader perspectives and options, which are not always taken into account. Incorporating this knowledge is intended to increase the relevance of health research, since the perspective of patients can lead to the formulation of additional research priorities or new research topics or questions. In this presentation, the difficulties that ethics has had when it comes to being integrated into health research are analyzed. The case of the TTV GUIDE TX clinical trial is presented to analyze the contributions that the patients' perspective can make to scientific research, and finally, how the participation of patients can be integrated into scientific research is described.

Author Information
Janet Delgado, University of Granada, Spain
Alberto Molina-Pérez, IESA CSIC, Spain
Gonzalo Díaz-Cobacho, University of Granada, Spain
David Rodríguez-Arias, University of Granada, Spain

Paper Information
Conference: ACERP2023
Stream: Ethics - Ethics and Science

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Posted by James Alexander Gordon